Saint-Germain-en-Laye 29 may 2017 each year, the last Wednesday of the month of may celebrates the World Day of multiple Sclerosis (MS) in 78 countries.
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Sanofi Genzyme, a leading player in this field, agrees with the UNIon for the fight against multiple Sclerosis (UNISEP) to shed light on this debilitating disease. This 9th edition is structured around the theme ” life with MS “.
WEDNESDAY 31 MAY : WORLD DAY OF MULTIPLE SCLEROSIS
Multiple Sclerosis is an autoimmune disease, inflammatory, chronic, leading to a degeneration of the central nervous system. It can affect both the brain and the spinal cord, in different forms.
This disease that affects 100,000 people in France1, said he was most often between 25 and 35 years of age and ¾ of people living with MS are women.
The objective of this day is to inform and support the actions of the network of solidarity to change the look on the disease.
A disease is still not known, which is characterized by many symptoms and often invisible
That sounds emotional, relational and professional
That impacts on the sufferer but also on the caregiver and his entourage
Accept the diagnosis at the age where the personal and professional projects take shape. Learn how to live all his life with a progressive disease and debilitating, the symptoms are invisible. What are some of the realities faced by the 100,000 people with MS in France.
ACCESS TO CARE AND INNOVATIONS
The emergence of new solutions raises hope in terms of treatment of substance. If the development of new treatments is a chance, it is a real challenge for the current healthcare system. In the Face of an economic constraint, weighing in particular on the drug, the ability to evaluate, fund and make available to French patients innovative treatments adapted to their pathologies, is today one of the major challenges of the system of care.
However, the improvement of the quality of life and the response to the expectations of people affected by a disease, neuro-degenerative constitute a national priority and fits fully within the framework of the ” Plan Neuro-degenerative Diseases 2014-2019 “.
EDUCATE AND ENGAGE: EVENTS on a large SCALE WAS LYON
Since 2013, the blue ribbon SEP© has become the symbol of support for people living with MS and their family and friends. The UNISEP calls everyone to wear this ribbon as a sign of commitment and support.
After Paris in 2016, the ribbon of the MS settles down for the 1st time this year in Lyon.
As of 19 may : the wrapping of the facade of the Civil Hospices of Lyon
From 29 may to 2 June : a capsule that reproduces the symptoms invisible from the disease in free access for the general public to Lyon Quai des Célestins
From 15 may to 15 June : 50 bicycles adorned with the ribbon crisscross the streets of Lyon
And elsewhere in France : a foot race, ” The Run SEP “, in Rouen on may 20 and in Caen on may 21,
AN EXHIBITION IN THE LOBBY OF the CIVIL HOSPICES 3 Quai des Célestins 69 003 Lyon ” SEPas what you believe in.”
Multiple Sclerosis symptoms are often unseen. Thus, 10 patients agreed to be photographed and staged to raise public awareness of the problems related to the disease : “He cries for nothing ? “, ” This person is drunk ? “, ” She has two left hands ? “”It is a battered woman ? “, …
The project is born out of a collaboration between the network Rhone Alps SEP, Info Space for Health, the HCL, the association Mandarin, and Sanofi Genzyme.
The exhibition is visible on the exterior facades of the capsule located at the Quai des Célestins in Lyon, and in the Lobby of the civil hospices of Lyon. You can also find the online exhibition on the website Sanofi.fr.
About Sanofi
Sanofi, a global health leaders, engages in the research, development and marketing of therapeutic solutions focused on patients ‘ needs. Sanofi is organized into five global entities : Diabetes and Cardiovascular, general Medicine and emerging Markets, Sanofi Genzyme, Sanofi Pasteur, and Health General Public.
www.sanofi.fr / @SanofiFR
Sanofi Genzyme specializes in drug development of specialty for disabling diseases, are often difficult to diagnose and to treat, in order to bring hope to patients and their families.
www.sanofigenzyme.fr / @SanofiGenzymeFR.
About the UNISEP
The UNISEP is the grouping of several associations having as common goal the fight against multiple Sclerosis. The information of the general public is one of its priority tasks in order to change the look on this disease.
Created in 1998, the UNISEP federates the main national associations of the fight against MS :
– The French Association of Sclérosés sclerosis (AFSEP) : www.afsep.fr
– The Association des Paralysés de France (APF) : www.apf.asso.fr
– The Foundation for Assistance to Research on multiple Sclerosis (ARSEP) : www.arsep.org
www.unisep.org
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